INTERNATIONAL WORKSHOP
ON BIOBANKING FOR
RARE DISEASES
02-03 May 2018 - Izmir, Turkey
Register


“International workshop on Biobanking for Rare Diseases”





Biobanks are repositories of sample and data that provide invaluable resources to both researchers and clinicians from a wide range of fields, including RDs. Access to biological materials and associated analytical and medical data is a prerequisite and a bottleneck for scientific research, particularly in RDs. RD biobanks play a pivotal role by maximizing access to precious samples between researchers in the international scientific community. Therefore, they are crucial for transnational efforts that aim to tackle a major health problem. Effective sharing and reusability of such unique samples require adherence to high-quality standards, harmonized standard operational procedures (SOPs) and searchable sample catalogs. This workshop will address these key aspects of RD biobanking. The topics will include principles of RD biobanking, how to establish a biobank for RDs, ethical concepts, quality management system, data and database management and security. Following the presentations by experts in the first day of the workshop, a problem-based tutorial section that will be focused on the challenges in RD biobanking and a hands-on training will be provided to participants on the second day.

This workshop is co-funded by a European Commission H2020 project, ADOPT BBMRI-ERIC under grant nr 676550. RD are a major item on the agenda for BBMRI-ERIC and collaboration beyond Europe is a must!



Local Organization Committee



Organization Committee





BBMRI-ERIC
www.bbmri-eric.eu

BBMRI.tr
www.biobank.gen.tr

IBG
www.ibg.org.tr



Local Organization Committee



Nur Arslan, MD, PhD

Neşe Atabey, PhD

Özlem Dalan, PhD

Cumhur Doğan

Soner Gündemir, MFin, PhD

Yavuz Oktay, PhD

Sanem Tercan Avcı, PhD

Merve Udeh

Görsev Yener, MD


Speakers

MEHMET ÖZTÜRK

Izmir Biomedicine and Genome Center,
Turkey

NEŞE ATABEY

Izmir Biomedicine and Genome Center,
Turkey

MARKUS PASTERK

BBMRI-ERIC,
Austria

MATS HANSSON

Uppsala University,
Sweden

ANDREA M. WUTTE

BBMRI-ERIC,
Austria

HEIMO MULLER

Medical University of Graz,
Austria

UĞUR ÖZBEK

Acıbadem University,
Turkey

RANIA LABIB

Children’s Cancer Hospital,
Egypt

IMANE CHERKAOUI

Université Mohammed V Souissi,
Morocco

MAHER SUGHAYER

King Hussein Cancer Center,
Jordan

ADA AL-QUNAIBET

King Said bin Abdulaziz University for Health Sciences (KSAU-HS), Saudi Arabia

SİBEL AYLİN UĞUR İŞERİ

Aziz Sancar Institute of Experimental Medicine, Turkey

SAID ISMAIL

Qatar Foundation,
Qatar

YOSR HAMDI

Institut Pasteur de Tunis,
Tunisia

YÜCEL ERBİLGİN

Aziz Sancar Institute of Experimental Medicine, Turkey

YAVUZ OKTAY

Izmir Biomedicine and Genome Center,
Turkey

GÖRSEV YENER

Dokuz Eylul University,
Turkey

NUR ARSLAN

Dokuz Eylul University,
Turkey

NEŞE DİREK

Dokuz Eylul University,
Turkey

TAMER ÖNDER

Koc University,
Turkey

AYÇA ERŞEN DANYELİ

Acıbadem University,
Turkey

HALUK YÜZÜGÜLLÜ

AstraZeneca,
USA

Program

Wednesday, May 2



08:00 - 09:00 Registration
09:00 - 09:15 Welcome and Introduction (Mehmet Öztürk)
09:15 - 09:30 Goals of the Workshop (Neşe Atabey)
09:30 - 10:15 Principles of Biobanking in Human Biospecimens
Markus Pasterk
10:15 - 10:45 Coffee Break
10:45 - 11:15 Ethical Concepts for Biobanking
Mats Hansson
11:15 - 11:45 QMS for Biobanking
Andrea M. Wutte
11:45 - 12:15 Data and Database Management and Security for Biobanks
Heimo Müller
12:15 - 13:30 LUNCH BREAK
13:30 - 15:30 PANEL: Establishment of a Modern Biobank (SESSION 1)
MODERATOR: Uğur Özbek
Rania Labib - Egypt
Imane Cherkaoui - Morocco
Maher Sughayer - Jordan
Ada Al-Qunaibet - Saudi Arabia
15:30 - 16:00 Coffee Break
16:00 - 17:30 PANEL: Establishment of a Modern Biobank (SESSION 2)
MODERATOR: Uğur Özbek
Sibel Aylin Uğur İşeri - Turkey
Said Ismail - Qatar
Yosr Hamdi - Tunisia
19:30 Dinner

Thursday, May 3



09:00 - 09:30 Introduction and Group Formation
09:30 - 12:00 Problem Based Learning (PBL) Sessions on Real-Life Scenarios in Biobanks
Tutors:
Uğur Özbek
Neşe Atabey
Sibel Uğur İşeri
Yücel Erbilgin
Yavuz Oktay
12:00 - 12:30 Group Discussions
12:30 - 13:30 LUNCH BREAK
Real Workflow in a Biobank
13:30 – 14:15 Taking Informed Consent for Biobanks: Case Studies
Görsev Yener, Nur Arslan
14:15 – 14:45 Importance of Deep Phenotyping for Biobanking
Neşe Direk
14:45 – 15:15 Sample Transport, Registration and Sample Processing
Yavuz Oktay
15:15 - 15:35 Coffee Break
15:35 – 16:05 Generation of Patient-Specific Induced Pluripotent Stem Cell Lines for Rare Genetic Diseases: Biobanking Perspective
Tamer Önder
16:05 – 16:35 Tissue Biobanking
Ayça Erşen Danyeli
16:35 – 17:05 A Living Biobank of Cancer Organoids and Patient Derived Xenograft (PDX) Models to Reduce High Attrition Rates in Drug Discovery
Haluk Yüzügüllü
17:05 - 17:35 QC and QM: Best Practices
Sibel Uğur İşeri
17:35 - 18:05 Access & Distribution of Biospecimens: Practical Issues
Yücel Erbilgin
18:05 - 18:15 Closing Remarks
19:30 Gala Dinner


The poster can be downloaded here.

Registration

REGISTRATION DEADLINE

Ends at April 2, Midnight (Istanbul Time)

SELECTION CRITERIA:

  • The workshop will be limited to 40 participants and opened to researchers, academics and biobankers who want to expand their experience in biobanking of human biospecimens.
  • Selection will be subject to an evaluation process.
  • A specific questionnaire will be available for applications and should be completed by each candidate.
  • The local organising committee will evaluate the received applications.
  • The target of the workshop will be mostly but not exclusively, MENA (Middle East and North Africa) and Mediterranean research and healthcare community.
  • Balanced participation from MENA countries will be emphasized. At least 50% of the participants will be selected from countries other than Turkey.
  • A gender balance between the selected participants will be ensured as much as possible.
  • Priority will be given to the participants who are planning to establish a rare disease biobank.

Onsite registration is not available.

QUALIFIED PARTICIPANTS:

NAME COUNTRY NAME COUNTRY
Amany MAHER Egypt Burcu KESİKLİ TR
Gülhas SOLMAZ TR Hadeer GHONIM Egypt
Hülya KIRAY ÇARÇABUK TR Jody BELL South Africa
Kübra YILMAZ TR M. Bilge PINARBAŞI TR
Dilara ÇAKMAK TR Doğukan KOÇ TR
Mervat ELDEFTAR Egypt Ouedraogo ISMAILA TR
Shadman TARIQ Iraq Şükrü TÜZMEN Cyprus
Tuba ÖZBAY TR Adil ŞEYTANOĞLU Cyprus
İmge KUNTER Cyprus Ehsan ULLAH Cyprus
Ahmet CARHAN TR Joanna VELLA Malta
Dina MOFED Egypt Faisal GULZAR Pakistan
Aydan SARAÇ TR Ayşe KOÇAK TR
Ayşe Sedef KÖSEER TR Bora TAŞTAN TR
Mahdi SHEKARI IRAN Meltem COSTANZO Dubai
Duygu UÇKAN ÇETİNKAYA TR Emre DAYANÇ TR
Esra IŞIK TR Kubilay Doğan KILIÇ TR
Nagehan ERSOY TUNALI TR Nazmiye ALTINTAŞ TR
Sema AYGAR TR Sevinç AKÇAY TR
Tuba SÜZEK TR Umur KELEŞ TR
Xiaozhou HU TR Esra ESMERAY TR


WAITING LIST

NAME COUNTRY NAME COUNTRY
Dehan ÇÖMEZ TR Gülsün BAĞCI TR
Didem ÖKMEN TR

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Sponsors



LOCATION

VENUE & ACCOMMODATION

İBG

The workshop will be held in “ Aziz Sancar Auditorium “ which was named after Aziz Sancar, the Nobel Laureate in chemistry in 2015. The conference hall locates at iBG-izmir building and hosted various iBG events since it was opened.

Dokuz Eylul University Saglik Kampusu 35340 Balcova, Izmir/TURKEY
Phone: +90 232 412 65 71
www.ibg.deu.edu.tr

Visa Information

For visa information please visit www.mfa.gov.tr/default.en.mfa

Transport

Taxi
Taxi, in general is quite reasonable. So, if you, as a visitor not having budget limitations, it is an advisable means of transportation. You should of  course remember to check that the "taximeter" showing how much you should pay is turned on. It starts calculates from 3.00 TL(Approximately 1 EUR) and adds 2,45 TL (0.75 EUR) per km.
The Adnan Menderes Airport is located 20km away from the conference venue (İBG). One of the simplest ways to reach the conference venue is to take a taxi and go to the Dokuz Eylul health campus. The average duration of travel is around 20 minutes.
Bus
Within the city of Izmir, the main public transport means is the red municipal buses. In these buses you can use money or you can use "Kent Kart" (City Card).
One of the cheapest ways to reach İBG is to take the 202 bus route that departs from the arrival level of the airport (the ground floor, bus station). At the "Fahrettin Altay Meydan" station, drop off from Route 202, across the street at "Uckuyular Pazaryeri" station get on one of the bus lines (5, 6, 7, 554, 950) or take a taxi (about 7-10TL). The nearest bus stop to the İBG is “Dokuz Eylul”. Average duration: 40mins. For detailed information about route and departure times please click here.
Metro
In the 11.6 km-long line of the İzmir metro there are a total of 10 stations, namely the Hatay/ Üçyol, Konak, Çankaya, Basmane, Hilal, Stadyum, Halkapınar, Sanayi, Bornova/ Bölge and the Bornova ones. In the Bornova/Halkapınar, Hatay/Üçyol connection stations there is a connection with a bus while in the Konak Station there is both a bus and a ferry connection.
Other
For airport transportation please click here.
For Metro transportation please click here.
For İzban transportation please click here.
For İzdeniz transportation please click here.
Tickets & Passes
İzmir has two travel cards, which cover bus, metro, İzban and ferry trips. These are available and can be recharged at stations, piers and shops with the Kent Kart sign. İzmirim Kart (City Card) You pay a 7 TL (2 EUR) deposit when you buy the card and then top it up with credit. When you use the card, 2.40 (0.7 EUR) is debited from it, then every journey you make for the next 90 minutes is free.

Accommodation

KAYA İzmir Thermal & Convention
Located in the Balcova region which is known as the historical Agamemnon thermal springs and renowned for its remedial thermal water since the ancient times, the 5 star Kaya Izmir Thermal & Convention Hotel is proud to be able to make its guests feel better by combining the medical care with plenty of oxygen and natural qualities at its physiotherapy and rehabilitation facilities which is recognized as the most modern thermal spa and treatment center in Turkey. Kaya Convention Center is the largest in Izmir with its 2,000 m² astylar style spacious hall built on 5,800 m² grounds.
For details please click here.

Price:
Single Deluxe Room: 65-Euro
Double Deluxe Room: 75-Euro

Ramada Encore

  • Overlooking panaromic sea and mountain of Izmir
  • Walking distance to thermal centers
  • Having comfortable transportation to Airport via highway in 15 minutes
  • Having comfortable transportation to new Fair Center via highway in 10 minutes
  • 10 minutes away from vity center with coastal road
  • In touch with the new charming shopping centers of Izmir
For details please click here.

Price:
Business Room (Land, Sea View)
Single Room: 43 €
Double Room: 53 €

Wyndham Grand İzmir
As a member of Wyndham Hotels & Resorts chain, Wyndham Grand İzmir Özdilek offers privileges and advantages of distinguished location embracing sea & city to gueststravelling  for business or leisure purposes and meeting delegates with five star hotel quality.
Hotel is close to recreation area with shopping malls, restaurants, cafés and military museum ship. Proximity to motorway for International Adnan Menderes Airport, Gaziemir Fair Complex, industrial zones including Aegean Free Zone, Ephesus and House of Virgin Mary makes the Hotel' s location excellent.
Scheduled free shuttle service to/from airport & different points in city,internet and free parking are available.
For details please click here.

Price:
STANDART ROOMS
Single Room 75 Euro
Double Room 90 Euro

CLUB ROOMS
Single Room 110 Euro
Double Room 130 Euro

SUIT
Junior Suit (Single) 200 Euro
Junior Suit (Double) 220 Euro
Senior Suit (Single) 270 Euro
Senior Suit (Double) 290 Euro
Presidential Suit (Single) 650 Euro
Presidential Suit (Double) 675 Euro

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